Over 70,000 adolescents and young adults, ages 15 to 39, are diagnosed with cancer in the US each year. These young people live with the long-term effects from cancer treatment including cognitive effects, cardiac issues, secondary cancers, and psychosocial impacts. While AYA patients have some psychosocial support when they start treatment, as they move into the surveillance phase of care, there is little help available to navigate the cancer journey.
The focus of this initiative is to address how clinicians and patients transition from treatment to survivorship and to help patients achieve the best possible quality of life.
Develop a common set of tools to screen for distress throughout the cancer journey
Develop a comprehensive list of services based on screenings to help patients and their families access support
Educate providers, patients, and payers about benefits of psychosocial screening and service provision.
Share findings and tools, and disseminate project results.
The goal of the AYA SOC is to adapt the content, tools and approaches to cancer care developed through the Adult and Pediatric SOC initiatives for the AYA population, operationalize processes, and identify community supportive care resources for AYA populations.
The AYA SOC works with clinical oncology teams to create and implement Supportive Care Sequences. The Supportive Care Sequence is a patient engagement tool that provides the right care and support information, at the right time, allowing patients the ability to self-manage supportive care needs. The aim of utilizing Supportive Care Sequences is on improving quality of life, supportive care, and holistic primary care.