Supportive Oncology Collaborative Design Sub-Teams Tackle Areas of Need


Coleman Supportive Oncology Collaborative Spring Newsletter

Supported by The Coleman Foundation
The second cycle of the Coleman Supportive Oncology Collaborative, which began January 1, 2017, continues with excellent quality improvement efforts underway at all 10 hospital sites and support from four design sub-teams (described below).

The Collaborative continues to gain visibility and interest from our publishing and presentations. Please see survey link in presentations and publishing section to indicate your interest in publishing opportunities from the work of the Collaborative.

CSOC’s 4 Design Sub-teams Areas of Focus

The second cycle of CSOC has 4 design sub-teams who are focused on specific areas of need for cancer patients. The sub-teams have identified areas that need improvement and are focused on the activities listed below.

Emotional/Social Work/Support Center Sub-team

  • Clarification of local resources. GAP:41% of respondents report they don’t use or have access to a specific community organization
  • Scan of resources at community organizations
  • Update of patient resource information in Journey Connections
  • Increase awareness of local resources: presentation of Chicago area resources to cycle 2 site’s cancer and support treatment teams
  • Caregiver resources flyer/brochure that is standard across sites. Sites may adapt or add their local resources (if they have them)
  • “Reasons to refer” to psychologist / psychiatrist
  • Expand screening and awareness of “self-care” concerns/needs; offer support and resources

Geriatric / Aging Sub-team

  • Inclusion of geriatric / aging related concerns into screening tool
  • Development of brief geriatric oncology assessment, informed by Mohile SG, et al JNCCN 2015 September; 13(9): 1120-1130, NCCN guidelines, etc.
  • Treatment considerations for geriatric oncology patients
  • Work on policy white paper on home services funding. Goal to support patients who flow between hospital and SNF, who are able (or may be able) to be at home with help
  • Process / Protocol: screening, assessment, treatment considerations, communication
  • Creating communication standards / formats between oncology clinicians and skilled nursing facility / nursing home / assisted living

Advanced Disease Sub-team

  • Checklist for patients with life limiting cancer to address practical, financial, legal, and other personal and family planning
  • Cancer Take Charge Card (2-sided; fits in wallet)
  • Guidance on prognostic uncertainty (clinician and patient/family)

Process (metrics, reimbursement, EMR) Sub-team

  • Discussing and exploring billing codes, including:
    • Initial cancer treatment planning
    • Supportive oncology screening
    • Advance care planning discussions
    • Discussions about hospice
  • Developing documentation standards for use in EMR and to support billing
    • Supportive oncology planning
    • Advance care planning, using Stroger as model
    • Hospice discussions
  • Developing Supportive Oncology Collaboration guide book

If you are interested in participating in a sub-team, please email

Participants Of The CSOC Made Regional And National Presentations On Behalf Of The Collaborative Or Their Institution:
Are You Interested In Participating In CSOC Opportunities To Publish And/Or Present?
If So, Please Complete This Survey: CSOC – Publications Interest
Please Note: The Survey Also Provides Background On CSOC Publishing And Presentation Efforts So Far, Current Plans And Asks For Your Interest And Ideas.

Christine Weldon of Center for Business Models in Health Care presented two posters at the 2017 ASCO Quality Care Symposium:

  • “A consolidated screening tool for supportive oncology needs and distress.” Abstract & Poster Link
  • “Supportive oncology and survivorship care: initial impact of the Coleman Supportive Oncology Collaborative.” Abstract & Poster Link

Julia Trosman of Center for Business Models in Health Care presented two posters at the NCCN 22nd Annual Conference, also published in JNCCN’s May issue

  • Supportive Oncology Care: An NCCN Online Educational Series, AB2017-24, Julia R. Trosman, PhD, MBA; Betty Roggenkamp, BA; Stephanie Merce Boecher, RN, OCN, MSN; Amy Scheu, MSH, CHPCA; Patricia A. Robinson, MD; Frank J. Penedo, PhD; Sofia F. Garcia, PhD; Teresa Lillis, PhD; Rosa Berardi, BA; Javier Macias, BA; James Gerhart, PhD; Pam Khosla, MD; Shelly Lo, MD; Lauren Wiebe, MD; William Dale, MD PhD; Sheetal Mehta Kircher, MD; Carol Newsom, RN; Carol A. Rosenberg MD; Catherine Deamant, MD; and Christine B. Weldon, MBA; J Natl Compr Canc Netw 2017;15:667
  • Pilot Results of Consolidated Screening Tool for Distress and Supportive Oncology Needs, AB2017-03, Christine B. Weldon, MBA; Nancy Vance, BA; Amy Scheu, MSH; Lauren Allison Wiebe, MD; Shelly S. Lo, MD; Catherine Deamant, MD; Betty Roggenkamp, BA; Urjeet Patel, MD; Paramjeet Khosla, MD; Patricia A. Robinson, MD; Ana Gordon, AM, LCSW; Frank J. Penedo, PhD; James Gerhart, PhD; Teresa Lillis, PhD; William Dale, MD PhD; Eileen Knightly, MHA, BSN, RN; Rosa Berardi, BA; and Julia R. Trosman, PhD, MBA; J Natl Compr Canc Netw 2017;15:658

Oral presentations at the Cancer Survivorship Symposium, chaired by Frank Penedo, of Northwestern University, Link to 2017 Cancer Survivorship Symposium Agenda

  • Presentation by Julia Trosman on Community-Based Application of Supportive Oncology and Survivorship Care: The Coleman Supportive Oncology Collaborative
  • Presentation by Sofia Garcia on PROMIS-Based & EMR-Integrated Distress Screening and Survivorship Care Planning in Oncology Care
  • Presentation by Sheetal Kircher on Survivorship Clinical Care Models: Centralized & Integrated Models of Care
  • Presentation by Tim Pearman on Distress Screening in Oncology: Practice, Pitfalls and Potential for Improving Cancer Care and Research

Desiree Azizoddin and Joanna Martin, collaborators from Jesse Brown VA, accepted study/poster presentation and was nominated for top 10% poster session research award at the International Society for Phamacoeconomics and Outcomes Research, ISPOR 22nd Annual International Meeting “THE PREVALENCE OF CANCER RELATED DISTRESS AMONG URBAN-DWELLING VETERANS: A PILOT STUDY”. Link to Scientific Presentations

ASCO 2017 Annual Meeting 3 E-Published Abstracts
Raising all boats in supportive oncology: Initial impact of the Coleman Supportive Oncology Collaborative (CSOC) Link to Meeting Abstract
Results of implementing a novel supportive oncology screening tool for comprehensive evaluation of distress and other supportive care needs. Link to Meeting Abstract
Areas for quality improvement in pediatric supportive oncology services. Link to Meeting Abstract

Doctor Praises CSOC Screening Tool and Translates the Survivorship into French:

“As a doctor, it’s a tremendous help to the patient interviews. Other standard screening tools cannot capture what your survivorship tool does… It’s excellent! I’m super grateful for your willingness to share it!“

Genevieve Chaput

Cedars Cancer Centre

McGill University Health Centre

Supportive Oncology Training created by CSOC is available on NCCN’s Educational Portal, with no cost CME/CEU

The CSOC developed 26 Supportive Oncology care education courses for

health professionals, with scientific review and hosting by the

National Comprehensive Cancer Network®

Link to:

These courses have been completed over 2000 time by medical professionals
CSOC Supportive Oncology Screening Tool, original and pilot versions, for Patient Concerns and Follow-up Reference Documents for each concern.
Available in English, Spanish, Mandarin and Polish

Link to Original: Supportive Oncology Screening Tool
Available in English, Spanish coming soon

Link to Revised Pilot: Supportive Oncology Screening Tool
Link to: Follow Up References to Supportive Oncology Screening Tool
Follow Up References aligned to Revised Screening Tool will be available in the coming months.
Overarching Goal of the Coleman Supportive Oncology Collaborative

Cancer patients are:

  • regularly screened for distress, psychosocial support and palliative care needs, and
  • receive all services as identified by screenings (from diagnosis through survivorship and end-of-life) from a collaboration of multiple high quality service providers that have core competencies in delivering cancer care and support.

CSOC Participating Organizations

Adventist Health, Advocate Health Care, American Cancer Society, American Society of Clinical Oncologists (ASCO), Aurora Health, Cadence Health Care System, Cancer Wellness Center, Cancer Support Center, City of Hope, Community Cancer Center, Gilda’s Club Chicago, Healing Pathways, Home of Hope, Hult Center for Healthy Living, Jesse Brown VA Medical Center, John H. Stroger Jr. Hospital of Cook County, JourneyCare, Leukemia and Lymphoma Society, Livestrong Foundation, LivingWell Cancer Resource Center, Loyola University Medical Center, Mercy Hospital and Medical Center, UnityPoint Health, Methodist⎮Proctor, NorthShore University HealthSystem, Northwestern Medicine, Rush University Medical Center, Sinai Health System, Stillwaters Cancer Support Services, Summa Health, Swedish Covenant Hospital, University of Chicago Medicine, University of Illinois Hospital & Health Sciences System, Wellness House